I am sure that I have already mentioned that I have Fibromyalgia, the reason that I am now a stay home mom. If you had not heard of it before then you are not alone, neither had I when I was diagnosed. I was glad to have a name to what was happening to my body, but there were more and more questions. The hard part about this disease is that on good to pretty good days I do not look sick and it is hard for others to comprehend what I am going through. Even my husband and daughter have a hard time understanding after two years of being diagnosed. Some days are okay and some days are not and when I don't look like something is wrong with me they sometimes forget. Trying to explain what is going on is also difficult because it is not only about good and bad days, but what I can do without paying a high price. For example, we went to Canada over the Christmas Holidays and my husband wanted me to be able to ski with him and my daughter, so he wanted me to ask my doctor if it would be okay. I already knew the answer, but asked anyways. The answer is yes, I can ski, but I might not be able to do anything else on the trip. Not because I might fall or might be sore, but because of the energy to ski would definable make me sore and because of the Fibromyalgia, my recover time would be much longer than the norm.
The Spoon Theory written by Christine Miserandino, http://www.butyoudontlooksick.com/wpress/articles/written-by-christine/the-spoon-theory/, is a perfect way to explain what it is really like. If you have time you should really check out the story. You never know who you might know that is suffering.